Even though she had complications the doctor was willing to perform the operation. At two weeks of age she was headed for her second surgery. She was diagnosed with coarctation of the aorta and a few other things which have corrected themselves.
Today she had a follow-up appointment this time with a doctor at CHOP. The first time that she has been to a specialized in the USA. CHOP has offices throughout the area. I called last Monday thinking it would take weeks to get an appointment but was surprised to get one today at an office 10 minutes away. Miss K wanted to go to the park and not the doctor. She told me to turn left as that is the way to the park. She was good and held her fingers for the doctor to check the oxygen saturation, then we were able to check the blood pressure on her arm and leg (that was one of the indications when she was born of a problem as they would get different readings on her arms than her legs) and then allowed him to listen to her heart. The doctor said it sounded good and we will wait until she is older for an Echo. In talking with the doctor he told me that coarctation of the aorta is not common in Down Syndrome children. Fifty percent of the children have heart problems but very few have coarctation of the aorta.
I am thankful that her heart continues to be fine. She is not on any medications. I am thankful for the doctor who did surgery. God has spared Miss K's life and he has a purpose and plan.