Wednesday, March 21, 2018

3.21 World Down Syndrome Day

Today is World Down Syndrome Day.

It is time for some of my random thoughts about parenting and loving someone with Down Syndrome. World Down Syndrome Day and her birthday usually cause me to reflect a bit.

This year has brought new changes and challenges. Last year Miss K turned 13. Yes, that means she is a teenager. I don't really think of her as a teenager but she will tell you that she is 13. So I guess I need to face that reality. At times she does act like a teenager. The other week her room had things all over the floor. I sent a photo to my sister-in-law as proof of a teenager.

Thirteen and a half years of parenting a child with Down Syndrome, what have I learned?

Do not put limits on what they can do. Miss K loves dance and currently while I write this is at Tap class and after that is modern dance. She was scheduled to do her ballet exam but it was postponed due to snow. There are so many other ways that I know not to put limits on her. I want to give her the opportunity to try and see what she is able to do.

Children with Down Syndrome dream of what they will do in the future. Miss K is very specific with what she wants to do. She wants to be a doctor at Children's Hospital and help sick children. She ignores the fact that we tell her she needs to do lots of school work.

Each child with Down Syndrome is unique. Whether it is their abilities, their interests, or their skills, each one is unique. Their medical needs vary.

Living with Miss K for 13 years and a half years has kept us laughing, a few tears, some moments of frustration and praying. I think that is called parenting.

Miss K has an incredible memory for some things. She can remember the dessert she had at someone's house. She can remember the snack you bought her when traveling. Some things she just can't remember -- math facts, to wear her glasses, and a few other things. I guess if it is important to her she will remember it.

Miss K is very observant and does not want to be left out of things. She is jumps in and joins in to life. She wants to try anything and everything. In her mind it is easy. She wants to learn to knit and it is easy for her. Recently she has been copying stories. She has seen the things that other children at school write and so she copies and does what she can.

Life with Miss K has not always been what I might have dreamed but I am not sure I would change any bit of it. I know that God has a plan for her life. I know that God preserved her life in the beginning and he continues to do that.I look forward to the next year and all that God will do in and through her.

So on the World Down Syndrome Day, do you know anyone with Down Syndrome? Tell me about them in the comments.


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